First time hubby starts port

O.M.G. tonight was my husband, Craig's, first time to try and start my port.   Oh geesh!   He did get it on the first try, but I thought he was going to push it through my whole body.  He was pushing so hard......the nurse said, "ok, now try the saline flush and let us know if it burns."  I said my entire arms hurts right now, I can't tell if the saline burns or not.  The one blessing in this is that at least I have a husband that cares enough to do this for me right.   He cares enough to be my nurse every day.  That is a blessing.  So today was the start of his "Lymie" nursing career.  Thanks hun!

Fighting for my Life

Not many of my friends on facebook or instagram know what I go through on a daily basis, and many of them don't even know that I am fighting for my life everyday.  For the past twelve years I have been battling a devastating disease called Lyme Disease.   Recently it has moved into the Chronic Lyme stages and things have gotten drastically worse.  I have been in active treatment for the past 13 months and have suffered major set backs and am still no closer to a cure.  I just got word from my LLmD that my CD57 dropped to 37.  That was a big blow to my treatment.  I was up to 103 and then down to 73 and now 37.  Kinda hit a downhill spiral I guess you could say.   From now on I'm going to be vocal about this very lonely disease.  I will not hide it anymore.  I am out and I am fighting!   2014 will be the year I beat this awful bug!